Is there Life with Fibromyalgia?

Last Update: May 31, 2018

1993 was the year I learned what it means to have an autoimmune disorder. Like so many fibromyalgia sufferers, I could not figure out why it hurt everywhere. Your joints ache. Your muscles feel like they are on fire. People think you are just trying to get attention. You must be lazy and so on.

The Beginning

Little did I realize this was just the beginning of a very long path that still doesn't have any end. After seeing several specialist and hearing everything from 'You need to take better care of your self to my personal favorite, " come back when you get your ducks in a row!" I felt totally defeated. Did no one else have this? How can they give something a name and not know how to treat it?

Pills

The only answer was to take more and more pills. I think I had tried every anti-inflamatory out there. Still, not much relief. I was tired, angry and just wanted the aching to stop. But it doesn't.

Countless exercise classes, water aerobics, relaxation techniques and still no real relief. One doctor said if I would just lose fifty pounds, my problem would be gone! Tried that too. Didn't help a lot either. Oh well...

Brain Fog

Working for state agencies required learning rules and regulations. You need to know several programs, how to administer them and keep accurate accounts. Hours were spent reading and studying only to have your brain check out. Supervisors and coworkers do not understand what your problem is. Pretending that nothing is wrong just isn't cutting it anymore. Depression sets in. You cannot function. You lose your job.

Anger

I wanted answers. I was upset with myself, my kids and my husband. How could they go on through their day not seeing or understanding what I was going through? Did they really not care? I would lay in bed and cry myself to sleep only to wake up in the middle of the night. Sleep took on a whole new meaning. To this day, I still have issues with it.

The light came on

About a month ago I came across an ad for CBD oil. Just as luck would have it, I watched an interview on Dateline about the use and benefits of the oil. That's when the lights came on.

What if this really does do what they claim? How much will it cost me? Plus a million other questions including if it is legal. (It is where I live in Montana) Now I am not promoting everyone try it, but you may want to take a gander at the reviews about using it.

Cost vs. Prescriptions

At my last doctor visit, she told me the only options left for my pain was to try a drug called LYRICA. I am sure you have seen the ads on TV. The manufacture list over 70 side effects! Plus my out of pocket expense would be around$400.00 a month!

Hello CBD Oil. The average cost is $39.99 approx. Depending on how much you use. But the maximum I would spend would be around $65.

It doesn't take a lot of brain power to sum this one up.

One Week

I did a lot of research on the different types, companies, and delivery options. May 23rd was my start date. I tried my first dropper of oil that morning. Now here I am ten days later. The changes are slight but I am noticing a difference. I believe it is starting to work. I am going to test it for six weeks.

Like I said before, it may not be for everyone. Not every person gets the same results. Some do not get any, but with no reported side effects, it is hard to turn down. Oh, I spent $39.99 for the first bottle. I take it twice a day. It is still along way from empty.

PS...

I also suffer from Rheumatoid Arthritis. The aching in my joints has calmed down some since starting the oil.

If you have any questions, please email me or PM me.

Hugs to you all.











Join the Discussion
Write something…
Recent messages
EKaye1 Premium
Sorry to hear about your pain. My mother has osteoporosis. I hope the CBD oil will continue to work. All the best.
Eden
Reply
MargeCramer Premium
Hi Eden. Thanks for the reply. I am thinking that this oil is starting to work on joints. I have osteo also! It all runs in my family.
Reply
WendaSue Premium
I'm so sorry to hear about your pain. I hope you find relief.
Please keep us posted.
All the best,
Wendi
Reply
MargeCramer Premium
Thanks so much for reading my post. I will keep you informed.
Reply
CandiGirl71 Premium
I, too, suffer with Fibromyalgia. I have had it for over 30 years but was only diagnosed about 10 years ago. I broke down and cried when the Doctor asked me, "Has anyone told you that you have Fibromyalgia?". That's when my journey began. It has taken all this time to be able to find solutions that help manage the pain and chronic fatigue that accompanies it.

I am unable to take anti inflammatories due to a kidney condition that resulted from taking too many OTC meds to manage pain prior to my diagnosis. I now take Lyrica daily and have found much relief with it. I know because my level of pain and brain fog escalate dramatically if I have to go off it for a few days.

I am fortunate to have medical insurance that covers my prescriptions and my doctor's visits. I have tried CBD oil also. I got minimal relief, but I only took it for a couple of weeks. I believe I needed to have it in my system for longer than my sample lasted. It isn't covered by insurance and I can't afford the out of pocket expense, unfortunately.

It has taken years to find a working solution to my pain. It is not perfect, but it helps. I have an Internist as my Primary Care Physician. She is very knowledgeable about my conditions. I usually see my Rheumatologist and Nephrologist (kidney specialist) also, as well as a pain specialist. My life is filled with pain, fatigue and doctors.

I understand you.

Candice
Reply
MargeCramer Premium
Hi Candice; I don't think the pain will ever totally go away. Like you I have learned to live with it. I am thankful that my RA doc. is very open to letting me try this. She also had me do dry needling. That is totally amazing. It is done by a Physical Therapist. I get two to three treatments a year as they last that long. It is kind of like acupuncture. Check it out. It may help and my insurance covers it.
Reply
CarolMeador Premium
Hi, Candice. Your story sounds so similar to mine. My rheumatologist was the one who finally diagnosed mine. I was diagnosed with Chronic Fatigue Syndrome before that.

Carol
Reply
CandiGirl71 Premium
Thank you for the info. I've never heard of it. I am definitely going to check it out.
Reply
CandiGirl71 Premium
I was diagnosed with CFS a year or so after. On top of the fibro pain I also have osteoarthritis. My hips, knees, hands and back are primarily affected. It all changed my world. Now I only see specialists.
Reply
CarolMeador Premium
I get dry needling as well. It works wonders for my intractable headaches.
Reply
CandiGirl71 Premium
I've got to try this out. Thanks for the heads up
Reply
CarolMeador Premium
I know what you mean. I added another one yesterday when I was referred to a cardiologist by the ER. Having a sleep study in August as well. Ain't life with fibro grand??! That's the reality, but there IS life after fibro, just with lots of modifications. None of us are the person we used to be! Carol


1
Reply
CarolMeador Premium
Yes, it really helps. Ask your primary care physician for a referral for physical therapy for dry needling. Not sure if the referral has to be that specific, but I know that PTs do other treatments for fibro as well, so you want it specific to dry needling unless you want to try both at once, which would be awesome!
Reply
CandiGirl71 Premium
I've come in contact with a few other WA members who are in our "fibro club". It is a club that I don't want to invite others to join, as I know what they are going through to quality. We are not alone and that is good, actually a relief of sorts.

We have so many around us that really don't understand us and the way we have to live. It is good that we have others to talk to sometimes who truly understand. Marge is a new member of our "WA Fibro Club". I say, 'Welcome, with empathy".

Blessings
Candice
Reply
CandiGirl71 Premium
Yes, our stories are very similar. I have been seeing a Cardiologist and a Pulmonologist since 2004. I did have a cardiac episode, called a Heart Spasm. My heart just cramped up and stopped for a few minutes. Sound familiar? Spasm? Yep, I think it's related to the Fibro. Thankfully there was no permanent damage to my heart.

My answer, YES, there is life with Fibro. It is just a different sort of life. I know of those who choose to give in and wallow in their pain every day, constantly in bed. Those have chose to simply exist.

I choose to LIVE. You and Marge have also. That is why we are in WA. We may be limited by fibro in some way every day, however, we choose to push through it and go until we can't go anymore. I know my limits, as I am sure you both know yours. But, we can live productive lives and deal with fibro at the same time.

I really wish wonderful things to happen in your businesses.
Take care of yourselves.

Candice
Reply
CarolMeador Premium
Dashnow (Darleen) and Armlelmnt (Anita) are 2 others who could join if they wanted to. Haven't seen them respond to Marge's post, though, so maybe they haven't seen it yet.
Reply
mmonterola Premium
So sorry to hear about your chronic pains.

Glad that you found CBD oil ( I haven't tried it myself ) and giving you some hope.

Googled "fibromyalgia " and the symptoms that you described including sleep problems are so typical.

This could be a good niche for your website if you haven't started one about fibromyalgia. With your personal experiences, your posts would be very enlightening.

Hope you feel better each day.

Marita
Reply
MargeCramer Premium
Thanks. I have been thinking about just that also. I have a site started for Fibro but have been concentrating on just getting this one up. I am really torn between the two. lol
Reply
CarolMeador Premium
If you do decide to do a site on fibro, several of us could give you guest posts of our experiences with it.
Reply
Hollshope Premium
i live CBD oil. So great for inflammation! Hope you see fabulous results with it!
Reply
MargeCramer Premium
I am amazed at the results I have read about. Thanks
Reply
Top