Is there Life with Fibromyalgia?

1993 was the year I learned what it means to have an autoimmune disorder. Like so many fibromyalgia sufferers, I could not figure out why it hurt everywhere. Your joints ache. Your muscles feel like they are on fire. People think you are just trying to get attention. You must be lazy and so on.
The Beginning
Little did I realize this was just the beginning of a very long path that still doesn't have any end. After seeing several specialist and hearing everything from 'You need to take better care of your self to my personal favorite, " come back when you get your ducks in a row!" I felt totally defeated. Did no one else have this? How can they give something a name and not know how to treat it?
Pills
The only answer was to take more and more pills. I think I had tried every anti-inflamatory out there. Still, not much relief. I was tired, angry and just wanted the aching to stop. But it doesn't.
Countless exercise classes, water aerobics, relaxation techniques and still no real relief. One doctor said if I would just lose fifty pounds, my problem would be gone! Tried that too. Didn't help a lot either. Oh well...
Brain Fog
Working for state agencies required learning rules and regulations. You need to know several programs, how to administer them and keep accurate accounts. Hours were spent reading and studying only to have your brain check out. Supervisors and coworkers do not understand what your problem is. Pretending that nothing is wrong just isn't cutting it anymore. Depression sets in. You cannot function. You lose your job.
Anger
I wanted answers. I was upset with myself, my kids and my husband. How could they go on through their day not seeing or understanding what I was going through? Did they really not care? I would lay in bed and cry myself to sleep only to wake up in the middle of the night. Sleep took on a whole new meaning. To this day, I still have issues with it.
The light came on
About a month ago I came across an ad for CBD oil. Just as luck would have it, I watched an interview on Dateline about the use and benefits of the oil. That's when the lights came on.
What if this really does do what they claim? How much will it cost me? Plus a million other questions including if it is legal. (It is where I live in Montana) Now I am not promoting everyone try it, but you may want to take a gander at the reviews about using it.
Cost vs. Prescriptions
At my last doctor visit, she told me the only options left for my pain was to try a drug called LYRICA. I am sure you have seen the ads on TV. The manufacture list over 70 side effects! Plus my out of pocket expense would be around$400.00 a month!
Hello CBD Oil. The average cost is $39.99 approx. Depending on how much you use. But the maximum I would spend would be around $65.
It doesn't take a lot of brain power to sum this one up.
One Week
I did a lot of research on the different types, companies, and delivery options. May 23rd was my start date. I tried my first dropper of oil that morning. Now here I am ten days later. The changes are slight but I am noticing a difference. I believe it is starting to work. I am going to test it for six weeks.
Like I said before, it may not be for everyone. Not every person gets the same results. Some do not get any, but with no reported side effects, it is hard to turn down. Oh, I spent $39.99 for the first bottle. I take it twice a day. It is still along way from empty.
PS...
I also suffer from Rheumatoid Arthritis. The aching in my joints has calmed down some since starting the oil.
If you have any questions, please email me or PM me.
Hugs to you all.
I am unable to take anti inflammatories due to a kidney condition that resulted from taking too many OTC meds to manage pain prior to my diagnosis. I now take Lyrica daily and have found much relief with it. I know because my level of pain and brain fog escalate dramatically if I have to go off it for a few days.
I am fortunate to have medical insurance that covers my prescriptions and my doctor's visits. I have tried CBD oil also. I got minimal relief, but I only took it for a couple of weeks. I believe I needed to have it in my system for longer than my sample lasted. It isn't covered by insurance and I can't afford the out of pocket expense, unfortunately.
It has taken years to find a working solution to my pain. It is not perfect, but it helps. I have an Internist as my Primary Care Physician. She is very knowledgeable about my conditions. I usually see my Rheumatologist and Nephrologist (kidney specialist) also, as well as a pain specialist. My life is filled with pain, fatigue and doctors.
I understand you.
Candice
Glad that you found CBD oil ( I haven't tried it myself ) and giving you some hope.
Googled "fibromyalgia " and the symptoms that you described including sleep problems are so typical.
This could be a good niche for your website if you haven't started one about fibromyalgia. With your personal experiences, your posts would be very enlightening.
Hope you feel better each day.
Marita