0.5 Million Chance

220 followers

11 years ago

2 days ago I found out that my baby who is now almost 8 months old has a rare genetic condition (affects 1 in 500,000.00 babies) called PMD. He will lose the use of his arms and legs, probably never speak and will need assistance breathing and eating. The prognosis is not good.

My life has changed over night and I am in shock to say the least. As members of WA we probably all agree that it is a dream of ours to make a full time income by working online. This is one of my goals now more than ever. Because if I was able to do this then the huge financial weight that we have on our shoulders would not be such a worry. I find myself thinking about surviving on one income, providing the special equipment that he will need and the reality of never being able to have a 'day job' to meet these financial needs. But by working on my website, learning, and in turn helping other members at WA, I have a hope that one day (I am patient), making even a small amount of money is possible.

We are all here for many different reasons and this is mine. Thanks to all for reading this and I look forward to talking to you soon!

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Recent Comments

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WrightA

11 years ago

Heather, words seem so meaningless and pointless when a mom aches for her baby. I am praying for His steady hand to guide you through what is to come, His embracing arms to protect and love your baby boy, and for your WA career to grow and flourish so that you can be home and provide for your family. Many many virtual hugs!!
~Amanda

hw1000

11 years ago

Thank you so much. All the best to you also :)

BIS

11 years ago

Oh Heather. Words are completely inadequate in these situations. Life can be incredibly unfair. I am so sorry for your son, you and the rest of your family. In my thoughts. :) Beverley

hw1000

11 years ago

Thanks so much for your support. :)

Stacydee

11 years ago

I've been reading about PMD and I'm absolutely speechless. May all the strength we have be with you, I second what Stonefox said.

hw1000

11 years ago

Thanks so much :)

KD6PAO

11 years ago

Heather I just don't know what to say. You and your son are in my prayers. Just keep your faith. I know that is easy to say. All of WA is here when you need us. So call out to us whenever you just need to. God Bless.

hw1000

11 years ago

thanks for your kind words :)

Stonefox

11 years ago

Heather,

I am so heartbroken to hear about your baby boy. I'm so sorry. Try to have faith and to keep your positive attitude. I know that sounds like such a hard thing to do right now. Type anytime you need another piece of "therapy". I know it may not seem like much at this point, but you have friends here. Faraway perhaps in body, but not in spirit. Best Regards to you and yours.

hw1000

11 years ago

thank you :)

hw1000

11 years ago

thanks for your support everyone and allowing me my piece of 'therapy'.

Kierra1215

11 years ago

My heart goes out to you and your family. May God lay his blessed and healing hands on your precious baby boy and I'll be praying for you. Most people don't understand what it is to sympathize with someone until it hits home. God bless!!